How scientists can take the lead in establishing ethical practices for social media research
Author(s) -
Sherry Pagoto,
Camille Nebeker
Publication year - 2018
Publication title -
journal of the american medical informatics association
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.614
H-Index - 150
eISSN - 1527-974X
pISSN - 1067-5027
DOI - 10.1093/jamia/ocy174
Subject(s) - social media , scientific misconduct , public relations , political science , research ethics , engineering ethics , misconduct , lead (geology) , ethical issues , humanity , internet privacy , law , engineering , medicine , computer science , alternative medicine , pathology , geomorphology , geology
Social media use has become ubiquitous in the United States, providing unprecedented opportunities for research. However, the rapidly evolving research landscape has far outpaced federal regulations for the protection of human subjects. Recent highly publicized scandals have raised legitimate concerns in the media about how social media data are being used. These circumstances combined with the absence of ethical standards puts even the best intentioned scientists at risk of possible research misconduct. The scientific community may need to lead the charge in insuring the ethical use of social media data in scientific research. We propose 6 steps the scientific community can take to lead this charge. We underscore the important role of funding agencies and universities to create the necessary ethics infrastructure to allow social media research to flourish in a way that is pro-technology, pro-science, and most importantly, pro-humanity.
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