Opportunities and challenges in the use of personal health data for health research | Zendy

Matthew J. Bietz | Zendy; Cinnamon S. Bloss | Zendy; Scout Calvert | Zendy; Job Godino | Zendy; Judith Gregory | Zendy; Michael P. Claffey | Zendy; Jerry Sheehan | Zendy; Kevin Patrick | Zendy

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Opportunities and challenges in the use of personal health data for health research

Author(s) -

Matthew J. Bietz,

Cinnamon S. Bloss,

Scout Calvert,

Job Godino,

Judith Gregory,

Michael P. Claffey,

Jerry Sheehan,

Kevin Patrick

Publication year - 2015

Publication title -

journal of the american medical informatics association

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 1.614

H-Index - 150

eISSN - 1527-974X

pISSN - 1067-5027

DOI - 10.1093/jamia/ocv118

Subject(s) - business , public relations , research ethics , stakeholder , stakeholder engagement , data sharing , internet privacy , knowledge management , marketing , digital health , psychology , health care , medicine , political science , computer science , alternative medicine , pathology , psychiatry , law

Understand barriers to the use of personal health data (PHD) in research from the perspective of three stakeholder groups: early adopter individuals who track data about their health, researchers who may use PHD as part of their research, and companies that market self-tracking devices, apps or services, and aggregate and manage the data that are generated.

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