Data Resource Profile: The UK Cystic Fibrosis Registry

Data Resource Profile: The UK Cystic Fibrosis Registry David Taylor-Robinson,* Olia Archangelidi, Siobhán B Carr, Rebecca Cosgriff, Elaine Gunn, Ruth H Keogh, Amy MacDougall, Simon Newsome, Daniela K Schlüter, Sanja Stanojevic and Diana Bilton; on behalf of the CF-EpinNet collaboration Department of Public Health and Policy, University of Liverpool, Liverpool, UK, National Heart and Lung Institute, Imperial College London, London, UK, Department of Paediatric Respiratory Medicine, Royal Brompton and Harefield NHS Foundation Trust, London, Cystic Fibrosis Trust, Aldgate, London, UK, Department of Medical Statistics, London School of Hygiene and Tropical Medicine, London, UK, Centre for Health Informatics, Computing and Statistics (CHICAS), Lancaster University, Lancaster, UK and Translational Medicine, Hospital for Sick Children and Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, ON, Canada