Open AccessDevelopment and Psychometric Properties of the Inflammatory Bowel Disease Distress Scale (IBD-DS): A New Tool to Measure Disease-Specific Distress
Author(s) -
Lesley Dibley,
Wladyslawa CzuberDochan,
Sue Woodward,
Tiffany Wade,
Paul Bassett,
Jackie Sturt,
Christine Norton,
IBD-DS Patient and Public Involvement Team,
Andrew Bellamy,
Calum Cark,
Leslie Everest,
Sandra Kutner
Publication year - 2018
Publication title -
inflammatory bowel diseases
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.932
H-Index - 146
eISSN - 1536-4844
pISSN - 1078-0998
DOI - 10.1093/ibd/izy108
Subject(s) - distress , inflammatory bowel disease , disease , medicine , measure (data warehouse) , psychometrics , scale (ratio) , clinical psychology , gastroenterology , computer science , data mining , quantum mechanics , physics
Inflammatory bowel disease (IBD) imposes a heavy psychosocial burden, with many patients reporting anxiety, depression, and distress. In diseases such as diabetes, disease-specific distress is associated with concordance with treatments and disease control. IBD distress, distinct from anxiety and depression, is evident in people with IBD. We aimed to develop a questionnaire for assessing IBD-specific distress, validate this against a gold standard distress measure for diabetes, and demonstrate the difference between anxiety, depression, and distress.
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