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Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR)
Author(s) -
Mike Horton,
Jan R. Oyebode,
Linda Clare,
Molly Megson,
Leanne Shearsmith,
Carol Brayne,
Paul Kind,
Zoë Hoare,
Hareth AlJanabi,
Val Hewison,
Alan Tennant,
Penny Wright
Publication year - 2019
Publication title -
the gerontologist
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.524
H-Index - 138
eISSN - 1758-5341
pISSN - 0016-9013
DOI - 10.1093/geront/gnz136
Subject(s) - dementia , psychology , quality of life (healthcare) , gerontology , psychometrics , clinical psychology , psychiatry , medicine , psychotherapist , disease , pathology
A 2008 European consensus on research outcome measures in dementia care concluded that measurement of carer quality of life (QoL) was limited. Three systematic reviews (2012, 2017, and 2018) of dementia carer outcome measures found existing instruments wanting. In 2017, recommendations were published for developing reliable measurement tools of carers' needs for research and clinical application. The aim of this study was to develop a new instrument to measure the QoL of dementia carers (family/friends).

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