Open AccessOutcomes after kidney transplantation, let’s focus on the patients’ perspectives
Author(s) -
Yiman Wang,
Jaapjan D. Snoep,
Marc H Hemmelder,
Koen E.A. van der Bogt,
Willem Jan W Bos,
Paul J M van der Boog,
Friedo W. Dekker,
Aiko P. J. de Vries,
Yvette Meuleman
Publication year - 2021
Publication title -
clinical kidney journal
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.033
H-Index - 40
eISSN - 2048-8513
pISSN - 2048-8505
DOI - 10.1093/ckj/sfab008
Subject(s) - medicine , kidney transplantation , transplantation , quality of life (healthcare) , intensive care medicine , health care , kidney transplant , surgery , nursing , economics , economic growth
Graft function and patient survival are traditionally the most used parameters to assess the objective benefits of kidney transplantation. Monitoring graft function, along with therapeutic drug concentrations and transplant complications, comprises the essence of outpatient management in kidney transplant recipients (KTRs). However, the patient's perspective is not always included in this process. Patients' perspectives on their health after kidney transplantation, albeit subjective, are increasingly acknowledged as valuable healthcare outcomes and should be considered in order to provide patient-centred healthcare. Such outcomes are known as patient-reported outcomes (PROs; e.g. health-related quality of life and symptom burden) and are captured using PRO measures (PROMs). So far, PROMs have not been routinely used in clinical care for KTRs. In this review we will introduce PROMs and their potential application and value in the field of kidney transplantation, describe commonly used PROMs in KTRs and discuss structural PROMs implementation into kidney transplantation care.