“We're Taking Something So Human and Trying to Digitize”: Provider Recommendations for mHealth in Palliative Care
Author(s) -
Jennifer Dickman Portz,
Kelsey Lynett Ford,
David B. Bekelman,
Rebecca S. Boxer,
Jean S. Kutner,
Sara J. Czaja,
Kira Elsbernd,
Sheana Bull
Publication year - 2019
Publication title -
journal of palliative medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.986
H-Index - 90
eISSN - 1096-6218
pISSN - 1557-7740
DOI - 10.1089/jpm.2019.0216
Subject(s) - palliative care , mhealth , thematic analysis , nursing , context (archaeology) , medicine , health care , multidisciplinary approach , qualitative research , psychological intervention , paleontology , social science , sociology , economics , biology , economic growth
Background: Mobile health (mHealth) is a promising tool for improving health outcomes. However, the benefits of using mHealth in palliative care are under studied. Objective: As a first step to designing meaningful palliative care-specific mobile applications, this research explored provider perspectives regarding the utility of mHealth in palliative care. Design: A qualitative phenomenological study with semistructured interviews. Setting/Subjects: Providers from multiple disciplines working in palliative care settings at an academic medical center. Results: Thematic analysis resulted in five provider recommendations regarding the utility and design of palliative care-specific mHealth, including (i) thoughtfulness to language, context, and delivery when assessing palliative care needs; (ii) include tools for prognosis and advance care planning; (iii) tailor health and quality-of-life goals; (iv) emphasize supports for family and caregivers; and (v) consider technology abilities of older adults. Conclusions: Palliative care providers are enthusiastic about the use of mHealth to improve care coordination, facilitate communication, enhance symptom monitoring, and improve patient-family support. However, providers have reservations about mobile functionality and depersonalized assessment and care. Providers stress the utility of mHealth to facilitate palliative care rather than replace important multidisciplinary services.
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