Recontacting participants for expanded uses of existing samples and data: a case study | Zendy

Stephanie C. Chen | Zendy; Benjamin E. Berkman | Zendy; Sara Chandros Hull | Zendy

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Recontacting participants for expanded uses of existing samples and data: a case study

Author(s) -

Stephanie C. Chen,

Benjamin E. Berkman,

Sara Chandros Hull

Publication year - 2017

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2016.207

Subject(s) - waiver , institutional review board , informed consent , confusion , protocol (science) , medicine , data collection , biorepository , confidentiality , data sharing , family medicine , psychology , internet privacy , biobank , medical education , computer science , alternative medicine , bioinformatics , pathology , computer security , psychiatry , biology , political science , law , statistics , mathematics , psychoanalysis

Facilitating genomic research may require the use of samples and data collected via consent processes that did not include specific descriptions of secondary uses. We explore whether a waiver of consent with notification and the option to withdraw (WNOW) is a viable alternative to written informed consent for secondary uses of samples and data.

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