Family decision maker perspectives on the return of genetic results in biobanking research | Zendy

Laura A. Siminoff | Zendy; Heather M. Traino | Zendy; Maghboeba Mosavel | Zendy; Laura K. Barker | Zendy; Glencora Gudger | Zendy; Anita H. Undale | Zendy

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Family decision maker perspectives on the return of genetic results in biobanking research

Author(s) -

Laura A. Siminoff,

Heather M. Traino,

Maghboeba Mosavel,

Laura K. Barker,

Glencora Gudger,

Anita H. Undale

Publication year - 2015

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2015.38

Subject(s) - biobank , context (archaeology) , computer science , affect (linguistics) , authorization , psychology , computer security , biology , bioinformatics , communication , paleontology

There are many ethical considerations regarding the return of genetic results to biobanking participants, especially when biobanks collect samples from deceased organ and tissue donors that require the authorization of a family decision maker (FDM). This article explores FDM knowledge and opinions regarding return of genetic results in the context of the Genotype-Tissue Expression (GTEx) Project, which does not return results to participants.

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