How do research participants perceive “uncertainty” in genome sequencing? | Zendy

Barbara B. Biesecker | Zendy; William M. P. Klein | Zendy; Katie L. Lewis | Zendy; Tyler C. Fisher | Zendy; Martha Frances Wright | Zendy; Leslie G. Biesecker | Zendy; Paul K. J. Han | Zendy

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How do research participants perceive “uncertainty” in genome sequencing?

Author(s) -

Barbara B. Biesecker,

William M. P. Klein,

Katie L. Lewis,

Tyler C. Fisher,

Martha Frances Wright,

Leslie G. Biesecker,

Paul K. J. Han

Publication year - 2014

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2014.57

Subject(s) - anticipation (artificial intelligence) , feeling , perception , psychological intervention , genome , psychology , medicine , social psychology , genetics , biology , computer science , nursing , neuroscience , artificial intelligence , gene

The scope of uncertainty in genome sequence information has no rival in health-care delivery. We present data from adults participating in a National Institutes of Health study using this technology, in which perceptions of uncertainty are hypothesized to be key in predicting decisions to learn and act on genome health information.

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