Researchers’ views on informed consent for return of secondary results in genomic research | Zendy

Paul S. Appelbaum | Zendy; Abby J. Fyer | Zendy; Robert Klitzman | Zendy; Josue Martinez | Zendy; Erik Parens | Zendy; Yuan Zhang | Zendy; Wendy K. Chung | Zendy

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Researchers’ views on informed consent for return of secondary results in genomic research

Author(s) -

Paul S. Appelbaum,

Abby J. Fyer,

Robert Klitzman,

Josue Martinez,

Erik Parens,

Yuan Zhang,

Wendy K. Chung

Publication year - 2014

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2014.163

Subject(s) - informed consent , medicine , medline , psychology , family medicine , computational biology , alternative medicine , biology , pathology , biochemistry

Previous studies have suggested that genomic investigators generally favor offering to return at least some secondary findings to participants and believe that participants' preferences should determine the information they receive. We surveyed investigators to ascertain their views on four models of informed consent for this purpose: traditional consent, staged consent, mandatory return, and outsourced consent.

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