Informed consent for biobanking: consensus-based guidelines for adequate comprehension | Zendy

Laura M. Beskow | Zendy; Carrie Dombeck | Zendy; Cole P. Thompson | Zendy; J. Kemp Watson-Ormond | Zendy; Kevin P. Weinfurt | Zendy

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Informed consent for biobanking: consensus-based guidelines for adequate comprehension

Author(s) -

Laura M. Beskow,

Carrie Dombeck,

Cole P. Thompson,

J. Kemp Watson-Ormond,

Kevin P. Weinfurt

Publication year - 2014

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2014.102

Subject(s) - biobank , informed consent , comprehension , context (archaeology) , delphi method , delphi , metric (unit) , medical education , medicine , psychology , computer science , alternative medicine , bioinformatics , business , pathology , paleontology , marketing , artificial intelligence , biology , programming language , operating system

Federal regulations and best practice guidelines identify categories of information that should be communicated to prospective biobank participants during the informed consent process. However, uncertainty remains about which of this information participants must understand to provide valid consent.

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