Open AccessUnderstanding of informed consent by parents of children enrolled in a genetic biobank
Author(s) -
Jennifer Klima,
Sara FitzgeraldButt,
Kelly J. Kelleher,
Deena J. Chisolm,
R. Dawn Comstock,
Amy K. Ferketich,
Kim L. McBride
Publication year - 2013
Publication title -
genetics in medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 3.509
H-Index - 128
eISSN - 1530-0366
pISSN - 1098-3600
DOI - 10.1038/gim.2013.86
Subject(s) - biobank , informed consent , parental consent , family medicine , medicine , population , psychology , alternative medicine , environmental health , bioinformatics , pathology , biology
Prior research suggests that parents undervalue long-term risks associated with their children's participation in research studies. The primary aim of this study was to evaluate parental understanding of informed consent for a pediatric biobanking study.
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