Return of incidental findings in genomic medicine: measuring what patients value—development of an instrument to measure preferences for information from next-generation testing (IMPRINT) | Zendy

Caroline S. Bennette | Zendy; Susan Brown Trinidad | Zendy; Stephanie M. Fullerton | Zendy; Donald L. Patrick | Zendy; Laura M. Amendola | Zendy; Wylie Burke | Zendy; Fuki M. Hisama | Zendy; Gail P. Jarvik | Zendy; Dean A. Regier | Zendy; David L. Veenstra | Zendy

Open Access

Return of incidental findings in genomic medicine: measuring what patients value—development of an instrument to measure preferences for information from next-generation testing (IMPRINT)

Author(s) -

Caroline S. Bennette,

Susan Brown Trinidad,

Stephanie M. Fullerton,

Donald L. Patrick,

Laura M. Amendola,

Wylie Burke,

Fuki M. Hisama,

Gail P. Jarvik,

Dean A. Regier,

David L. Veenstra

Publication year - 2013

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2013.63

Subject(s) - salience (neuroscience) , genetic testing , medicine , disease , set (abstract data type) , clinical psychology , psychology , pathology , computer science , cognitive psychology , programming language

Little is known about the factors that influence patients' preferences for the return of incidental findings from genome sequencing. This study identified attributes of incidental findings that were important to patients and developed a discrete-choice experiment instrument to quantify patient preferences.

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