Public preferences regarding informed consent models for participation in population-based genomic research | Zendy

Jodyn Platt | Zendy; Juli Bollinger | Zendy; Rachel Dvoskin | Zendy; Sharon L. R. Kardia | Zendy; David Kaufman | Zendy

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Public preferences regarding informed consent models for participation in population-based genomic research

Author(s) -

Jodyn Platt,

Juli Bollinger,

Rachel Dvoskin,

Sharon L. R. Kardia,

David Kaufman

Publication year - 2013

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2013.59

Subject(s) - biobank , informed consent , preference , psychology , population , research ethics , family medicine , social psychology , medicine , alternative medicine , environmental health , psychiatry , genetics , pathology , economics , biology , microeconomics

Some large population biobanks that house biospecimens and health information for research seek broad consent from participants, whereas others reconsent for specific new studies. Understanding research participants' attitudes and preferences about broad and narrow consent may improve recruitment, retention, and public support.

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