Informed consent for return of incidental findings in genomic research
Author(s) -
Paul S. Appelbaum,
Cameron R. Waldman,
Abby J. Fyer,
Robert Klitzman,
Erik Parens,
Josue Martinez,
W. Nicholson Price,
Wendy K. Chung
Publication year - 2013
Publication title -
genetics in medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 3.509
H-Index - 128
eISSN - 1530-0366
pISSN - 1098-3600
DOI - 10.1038/gim.2013.145
Subject(s) - informed consent , medicine , medline , family medicine , bioinformatics , genetics , psychology , alternative medicine , biology , pathology , political science , law
Researchers face the dilemma of how to obtain consent for return of incidental findings from genomic research. We surveyed and interviewed investigators and study participants, with the goal of providing suggestions for how to shape the consent process.
Accelerating Research
Robert Robinson Avenue,
Oxford Science Park, Oxford
OX4 4GP, United Kingdom
Address
John Eccles HouseRobert Robinson Avenue,
Oxford Science Park, Oxford
OX4 4GP, United Kingdom