Am I a control?: Genotype-driven research recruitment and self-understandings of study participants
Author(s) -
Marsha Michie,
R. Jean Cadigan,
Gail E. Henderson,
Laura M. Beskow
Publication year - 2012
Publication title -
genetics in medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 3.509
H-Index - 128
eISSN - 1530-0366
pISSN - 1098-3600
DOI - 10.1038/gim.2012.88
Subject(s) - biobank , cystic fibrosis , genotype , anxiety , disease , meaning (existential) , psychology , medicine , qualitative research , clinical psychology , pathology , bioinformatics , psychiatry , psychotherapist , genetics , biology , sociology , social science , gene
Genotype-driven research recruitment complicates traditional study roles and may leave those recruited worried about unwelcome surprises from their DNA. This study investigated the ways that individuals experience genotype-driven recruitment, and conceptualize their roles as research participants.
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