Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients | Zendy

David Kaufman | Zendy; Juli Bollinger | Zendy; Rachel Dvoskin | Zendy; Joan Scott | Zendy

Open Access

Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients

Author(s) -

David Kaufman,

Juli Bollinger,

Rachel Dvoskin,

Joan Scott

Publication year - 2012

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2012.45

Subject(s) - opt out , veterans affairs , biobank , family medicine , random assignment , medicine , cohort , preference , health care , gerontology , psychology , political science , pathology , biology , world wide web , computer science , economics , genetics , microeconomics , law

In 2006, the Department of Veterans Affairs launched the Genomic Medicine Program with the goal of using genomic information to personalize and improve health care for veterans. A step toward this goal is the Million Veteran Program, which aims to enroll a million veterans in a longitudinal cohort study and establish a database with genomic, lifestyle, military-exposure, and health information. Before the launch of the Million Veteran Program, a survey of Department of Veterans Affairs patients was conducted to measure preferences for opt-in and opt-out models of enrollment and consent.

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