The responses of research participants and their next of kin to receiving feedback of genetic test results following participation in the Australian Ovarian Cancer Study | Zendy

Nina Hallowell | Zendy; Kathryn Alsop | Zendy; Margaret Gleeson | Zendy; Ashley Crook | Zendy; Loren Plunkett | Zendy; David D.L. Bowtell | Zendy; Gillian Mitchell | Zendy; MaryAnne Young | Zendy

Open Access

The responses of research participants and their next of kin to receiving feedback of genetic test results following participation in the Australian Ovarian Cancer Study

Author(s) -

Nina Hallowell,

Kathryn Alsop,

Margaret Gleeson,

Ashley Crook,

Loren Plunkett,

David D.L. Bowtell,

Gillian Mitchell,

MaryAnne Young

Publication year - 2013

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2012.154

Subject(s) - next of kin , test (biology) , ovarian cancer , medicine , qualitative research , genetic testing , psychology , family medicine , cancer , biology , paleontology , history , social science , archaeology , sociology

The generation of clinically significant genetic data during research studies raises a number of ethical issues about the feedback of this information to research participants. Little is known about research participants' experiences of this practice.

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