Developing a comprehensive, effective patient-friendly website to enhance decision making in predictive testing for Huntington disease | Zendy

Alice Virani | Zendy; Susan Creighton | Zendy; Michael R. Hayden | Zendy

Open Access

Developing a comprehensive, effective patient-friendly website to enhance decision making in predictive testing for Huntington disease

Author(s) -

Alice Virani,

Susan Creighton,

Michael R. Hayden

Publication year - 2012

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2012.149

Subject(s) - predictive testing , huntington's disease , disease , medicine , psychology

Predictive testing for Huntington disease is a complex decision, requiring in-depth counseling, education, and evaluation. Despite the growth in Web-based decision aids and educational resources, such tools for those considering Huntington disease testing are not available. The main objective of this project was to develop a patient-friendly, comprehensive, accessible Web-based tool to provide accurate information about testing for Huntington disease.

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