Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study | Zendy

Juli Bollinger | Zendy; Joan Scott | Zendy; Rachel Dvoskin | Zendy; David Kaufman | Zendy

Open Access

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

Author(s) -

Juli Bollinger,

Joan Scott,

Rachel Dvoskin,

David Kaufman

Publication year - 2012

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2011.66

Subject(s) - focus group , value (mathematics) , obligation , qualitative research , set (abstract data type) , psychology , social psychology , medicine , applied psychology , sociology , computer science , social science , machine learning , political science , law , programming language , anthropology

People are interested in receiving their individual research results in exchange for participating in genetic research. However, it is unclear whether the public understands the nature and limitations of these results and whether they would want information with unknown clinical utility.

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