The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository | Zendy

Erin D. Harris | Zendy; Sonja I. Ziniel | Zendy; Jonathan G. Amatruda | Zendy; Catherine Clinton | Zendy; Sarah Savage | Zendy; Patrick L. Taylor | Zendy; Noelle Huntington | Zendy; Robert C. Green | Zendy; Ingrid A. Holm | Zendy

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The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository

Author(s) -

Erin D. Harris,

Sonja I. Ziniel,

Jonathan G. Amatruda,

Catherine Clinton,

Sarah Savage,

Patrick L. Taylor,

Noelle Huntington,

Robert C. Green,

Ingrid A. Holm

Publication year - 2012

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1038/gim.2011.25

Subject(s) - biorepository , medicine , psychology , genetic testing , medline , clinical psychology , developmental psychology , family medicine , genetics , biology , biobank , biochemistry

Little is known about parental attitudes toward return of individual research results (IRRs) in pediatric genomic research. The aim of this study was to understand the views of the parents who enrolled their children in a genomic repository in which IRRs will be returned.

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