Open AccessPatient Perspectives About Decisions to Share Medical Data and Biospecimens for Research
Author(s) -
Jihoon Kim,
Hyeoneui Kim,
Elizabeth A. Bell,
Tyler Bath,
Paulina Paul,
Anh T. Pham,
Xiaoqian Jiang,
Kai Zheng,
Lucila OhnoMachado
Publication year - 2019
Publication title -
jama network open
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 3.278
H-Index - 39
ISSN - 2574-3805
DOI - 10.1001/jamanetworkopen.2019.9550
Subject(s) - data sharing , psychological intervention , transparency (behavior) , health care , medicine , computer science , family medicine , psychology , nursing , alternative medicine , computer security , pathology , economics , economic growth
This survey study examines the association between various presentations of consent forms and differences in electronic health record and biospecimen sharing rates among patients.
Accelerating Research
Robert Robinson Avenue,
Oxford Science Park, Oxford
OX4 4GP, United Kingdom
Address
John Eccles HouseRobert Robinson Avenue,
Oxford Science Park, Oxford
OX4 4GP, United Kingdom