Assessment of the Timing of Milestone Clinical Events in Patients With Epidermolysis Bullosa From North America
Author(s) -
James A. Feinstein,
Purevsuren Jambal,
Kathleen Peoples,
Anne W. Lucky,
Phuong Khuu,
Jean Y. Tang,
Irene LaraCorrales,
Elena Pope,
Karen Wiss,
Kristen P. Hook,
Laura E. Levin,
Kimberly D. Morel,
Amy S. Paller,
Catherine McCuaïg,
Julie Powell,
Lawrence F. Eichenfield,
Harper Price,
Moise L. Levy,
Lawrence A. Schachner,
John Browning,
Susan Bayliss,
Marla Jahnke,
Tor Shwayder,
Sharon A. Glick,
Anna L. Bruckner
Publication year - 2018
Publication title -
jama dermatology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.128
H-Index - 166
eISSN - 2168-6084
pISSN - 2168-6068
DOI - 10.1001/jamadermatol.2018.4673
Subject(s) - medicine , epidermolysis bullosa , epidermolysis bullosa simplex , milestone , dermatology , cohort , population , epidermolysis bullosa dystrophica , cohort study , pediatrics , environmental health , archaeology , history
Children with epidermolysis bullosa (EB) comprise a rare population with high morbidity and mortality. An improved understanding of the clinical trajectory of patients with EB, including age at time of clinical diagnosis and major clinical events, is needed to refine best practices and improve quality of life and clinical outcomes for patients with EB.
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