Open AccessPalliative care in duchenne muscular dystrophy: A study on parents' understanding
Author(s) -
Arun Sadasivan,
Manjusha G Warrier,
Kiran Polavarapu,
Veeramani PreethishKumar,
Meera G Nair,
Keerthipriya,
Seena Vengalil,
John Vijay Sagar,
M. Thomas Kishore,
Atchayaram Nalini,
Priya Treesa Thomas
Publication year - 2021
Publication title -
indian journal of palliative care/indian journal of palliative care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.395
H-Index - 26
eISSN - 1998-3735
pISSN - 0973-1075
DOI - 10.4103/ijpc.ijpc_259_20
Subject(s) - palliative care , medicine , thematic analysis , duchenne muscular dystrophy , nursing , qualitative research , quality of life (healthcare) , disease , family medicine , social science , pathology , sociology
Duchene muscular dystrophy (DMD) is a neuromuscular disease of childhood, which has clear progression. The international standardized care guidelines for DMD suggest that palliative care is essential for the affected children.