Open AccessPoor health related quality of life among patients of sickle cell disease
Author(s) -
Vijay Manohar Bhagat,
Shubhangi R Baviskar,
Abhay Mudey,
Ramchandra C Goyal
Publication year - 2014
Publication title -
indian journal of palliative care/indian journal of palliative care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.395
H-Index - 26
eISSN - 1998-3735
pISSN - 0973-1075
DOI - 10.4103/0973-1075.132622
Subject(s) - medicine , quality of life (healthcare) , disease , anemia , pharmacotherapy , pediatrics , physical therapy , intensive care medicine , psychiatry , nursing
Sickle cell disease (SCD) is characterized by chronic hemolytic anemia and vascular occlusion, causing recurrent painful episodes, neuro-cognitive deficits, organ failures and death in early adulthood. Besides the medical consequences, most of the families with a child of SCD have to cope with financial and social crisis. Quality of life (QOL) is a broad multidimensional concept that usually includes subjective evaluations of both positive and negative aspects of life. Other than health; emotional well being, social dysfunction, chronic pain and fatigability are also important aspects of overall quality of life that add to the complexity of its measurement.