Open Access<p>Ethical Questions Linked to Rare Diseases and Orphan Drugs – A Systematic Review</p>
Author(s) -
Jaroslav Kacetl,
Petra Marešová,
Raihan Maskuriy,
Ali Selamat
Publication year - 2020
Publication title -
risk management and healthcare policy
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.828
H-Index - 22
ISSN - 1179-1594
DOI - 10.2147/rmhp.s260641
Subject(s) - orphan drug , scopus , rare disease , beneficence , medicine , political science , systematic review , engineering ethics , disease , family medicine , medline , bioinformatics , pathology , biology , law , engineering , autonomy
Rare or orphan diseases have become an important target of healthcare activities all over the world. The study aims to identify ethical questions linked to rare diseases and orphan drugs and ethical principles or approaches applied to solve them.