Open AccessDo Generic Preference-Based Measures Accurately Capture Areas of Health-Related Quality of Life Important to Individuals with Amyotrophic Lateral Sclerosis: A Content Validation Study
Author(s) -
Nicole Peters,
Vanina Dal Bello-Haas,
Tara Packham,
Marvin Chum,
Colleen O’Connell,
Wendy Johnston,
Joy C. MacDermid,
John Turnbull,
Jill Van Damme,
Ayse Kuspinar
Publication year - 2021
Publication title -
patient related outcome measures
Language(s) - English
Resource type - Journals
ISSN - 1179-271X
DOI - 10.2147/prom.s313512
Subject(s) - amyotrophic lateral sclerosis , medicine , preference , quality of life (healthcare) , quality (philosophy) , physical medicine and rehabilitation , statistics , pathology , disease , nursing , mathematics , philosophy , epistemology
The objectives of this study were to 1) assess the content validity of generic preference-based measures (GPBMs), and (2) examine the convergent validity of the EuroQol 5 Dimension 5 Level (EQ-5D-5L), against the Patient Generated Index (PGI) in Amyotrophic Lateral Sclerosis (ALS).