Open Access<p>Content Validation of the ATTR Amyloidosis Patient Symptom Survey: Findings from Patient and Clinician Cognitive Debriefing Interviews</p>
Author(s) -
Avery A. Rizio,
Lynne Broderick,
Michelle White,
Tiffany P. Quock
Publication year - 2020
Publication title -
patient related outcome measures
Language(s) - English
Resource type - Journals
ISSN - 1179-271X
DOI - 10.2147/prom.s264034
Subject(s) - debriefing , medicine , content validity , cognitive interview , clarity , medical diagnosis , cognition , patient reported outcome , amyloidosis , clinical psychology , psychiatry , psychometrics , pathology , quality of life (healthcare) , nursing , biochemistry , chemistry , medical education
Amyloid transthyretin (ATTR) amyloidosis is a rare, progressive, and fatal disease. The ATTR Patient Symptom Survey (ATTR-PSS) was previously developed through literature review and concept elicitation input from clinicians and patients and revised after evaluation by a patient focus group. This study further evaluated the content validity of the ATTR-PSS through qualitative cognitive debriefing interviews with clinicians and patients.