Open Access<p>Developing a Preliminary Conceptual Framework for Guidelines on Inclusion of Patient Reported-Outcome Measures (PROMs) in Clinical Quality Registries</p>
Author(s) -
Rasa Ruseckaite,
Ashika Maharaj,
Karolina Krysińska,
J. Dean,
Susannah Ahern
Publication year - 2019
Publication title -
patient related outcome measures
Language(s) - English
Resource type - Journals
ISSN - 1179-271X
DOI - 10.2147/prom.s229569
Subject(s) - inclusion (mineral) , patient reported outcome , medicine , conceptual framework , health care , quality (philosophy) , perspective (graphical) , management science , nursing , quality of life (healthcare) , psychology , computer science , social psychology , philosophy , epistemology , economics , economic growth , artificial intelligence
Patient-centred and value-based health-care organisations are increasingly recognising the importance of the patient perspective in the measurement and evaluation of health outcomes. This has been primarily implemented using patient-reported outcome measures (PROMs). Clinical quality registries (CQRs) are specifically designed to improve direct clinical care, benchmark health-care provision and inform health service planning and policy. Despite CQRs having incorporated the patient perspective to support the evaluation of health-care provision, no evidence-based guidelines for inclusion of PROMs in CQRs exist. This has led to substantial heterogeneity in capturing and reporting PROMs within this setting. This publication is the first in a series describing the development of evidence-informed guidelines for PROMs inclusion within CQRs in Australia.