Open AccessPatients’ Perception of the Impact of Innovation on Hemophilia Care Management Organization: A Qualitative Study Protocol (INNOVHEMO Study)
Author(s) -
Karen Beny,
Benjamin du Sartz de Vigneulles,
V. Chamouard,
Ronald Guilloux,
Claude Négrier,
Claude Deroanne
Publication year - 2021
Publication title -
patient preference and adherence
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.885
H-Index - 48
ISSN - 1177-889X
DOI - 10.2147/ppa.s322531
Subject(s) - medicine , qualitative research , perception , family medicine , phone , protocol (science) , nursing , alternative medicine , pathology , social science , linguistics , philosophy , neuroscience , sociology , biology
New therapies provide a favorable evolution in the care management of persons with hemophilia. However, the impact of these new therapies on patient care organization remains to be determined. A qualitative study will be implemented to analyze patients' perception regarding the impact of innovation on the organization of their care management. Secondary objectives will include refining specific factors related to persons with hemophilia (barriers or facilitators, especially the place of treatment) to consider within an organizational impact analysis.