Open Access<p>Multidisciplinary Management of Tethered Spinal Cord Syndrome in Children: Operationalizing an Outpatient Patient-Centered Workflow</p>
Author(s) -
Mandana Behbahani,
Nathan A. Shlobin,
Colleen Rosen,
Elizabeth B. Yerkes,
Vineeta T. Swaroop,
Sandi Lam,
Robin Bowman
Publication year - 2020
Publication title -
journal of multidisciplinary healthcare
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.65
H-Index - 30
ISSN - 1178-2390
DOI - 10.2147/jmdh.s274296
Subject(s) - operationalization , multidisciplinary approach , workflow , medicine , tethered cord , spinal cord , multidisciplinary team , bioinformatics , computer science , nursing , biology , psychiatry , physics , social science , quantum mechanics , database , sociology
Multidisciplinary care for patients with tethered spinal cord syndrome (TCS) is valuable in ensuring comprehensive evaluation, timely follow-up, optimal functional outcome, and patient-centered care. The family-centered focus aims to minimize patient and parental burdens associated with care coordination. We present our first-year institutional experience in operationalizing a multidisciplinary, patient-centered, pediatric tethered cord clinic (TCC) to manage routine, long-term surgical follow-up for children with non-myelomeningocele-related tethered spinal cords.