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Mothers' lived experiences of support when living with young children with congenital heart defects
Author(s) -
Bruce Elisabeth,
Lilja Catrine,
Sundin Karin
Publication year - 2014
Publication title -
journal for specialists in pediatric nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.499
H-Index - 38
eISSN - 1744-6155
pISSN - 1539-0136
DOI - 10.1111/jspn.12049
Subject(s) - heart defect , medicine , developmental psychology , psychology , pediatrics , heart disease , cardiology
Purpose The purpose of this study was to illuminate the meanings of support as disclosed by mothers of children with congenital heart defects ( CHD ). Design and Method Narrative interviews were conducted with 10 mothers of children with CHD . A phenomenological‐hermeneutic method was used for interpretation of the transcribed interviews. Results The comprehensive understanding of mothers' lived experiences of support emerged as the experiences of receiving good support, receiving “poor support,” and absence of support. Practice Implications Mothers receiving person‐centered and family‐centered care feel more supported and are more likely to adapt to the stresses of parenting a child with CHD .