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Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data
Author(s) -
Ploug Thomas,
Holm Søren
Publication year - 2016
Publication title -
bioethics
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.494
H-Index - 55
eISSN - 1467-8519
pISSN - 0269-9702
DOI - 10.1111/bioe.12286
Subject(s) - informed consent , balance (ability) , psychology , management science , medicine , alternative medicine , engineering , pathology , neuroscience
In this article we provide an in‐depth description of a new model of informed consent called ‘meta consent’ and consider its practical implementation. We explore justifications for preferring meta consent over alternative models of consent as a solution to the problem of secondary use of health data for research. We finally argue that meta consent strikes an appropriate balance between enabling valuable research and protecting the individual.