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Purpose  To compare health‐related quality of life and participation of visually impaired young adults with normative groups, and to explore severity of vision loss and its association with participation and quality of life.    Methods  Young adults aged 18–25 years ( n  = 172) registered at two Dutch low vision rehabilitation organizations completed the Short Form Health Survey ( SF ‐36), EuroQol‐5 Dimensions ( EQ ‐5D), Impact on Participation and Autonomy ( IPA ) and Low Vision Quality of Life questionnaire ( LVQOL ).  EQ ‐5D and  SF ‐36 scores were compared to age‐specific norms.  IPA  scores were compared to norms of a population having three chronic diseases simultaneously. Linear regression was used to assess the association between severity of vision loss (mild  VI , moderate  VI  and severe  VI /blindness), and quality of life and participation.    Results  Participants scored significantly worse on almost all (sub)scales compared with relevant norms. Effect sizes for the  EQ ‐5D and  SF ‐36 (sub)scales were mostly small; moderate and large effect sizes were found for the  IPA . Compared to young adults with mild  VI , corrected models showed a significant association between having moderate  VI  and the physical component score of the  SF ‐36, and between severe  VI /blindness and the  LVQOL .    Conclusion   VI  has a moderate impact on some aspects of quality of life and a large impact on participation of young adults when compared with relevant normative populations. Severity of vision loss is associated with worse physical functioning and vision‐related quality of life. The results contribute to a better understanding of the impact of  VI  and might lead to improved low vision services.

Quality of life and participation of young adults with a visual impairment aged 18–25 years: comparison with population norms