Open AccessTrue User Involvement by People Living With HIV is Possible: Description of a User-driven HIV Clinic in Norway
Author(s) -
Rigmor C. Berg,
Are Gamst,
Maryan Ahmad Said,
Kristin Bårdsen,
Solveig Helene Songe,
Kim Fangen,
Ole Rysstad
Publication year - 2015
Publication title -
the journal of the association of nurses in aids care/journal of the association of nurses in aids care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.636
H-Index - 49
eISSN - 1552-6917
pISSN - 1055-3290
DOI - 10.1016/j.jana.2015.07.002
Subject(s) - operationalization , human immunodeficiency virus (hiv) , empowerment , user research , set (abstract data type) , action (physics) , medicine , outpatient clinic , process (computing) , ehealth , health care , computer science , nursing , knowledge management , user experience design , human–computer interaction , family medicine , political science , philosophy , physics , epistemology , quantum mechanics , law , programming language , operating system
The Greater Involvement of People Living with or Affected by HIV principle highlights the various contributions HIV-infected people can make in HIV program development and implementation. We present a unique example of how service users' involvement led to a complete organizational redesign of an outpatient HIV clinic in Southern Norway. We applied a user-driven, case study method, which showed that establishing a user board laid the foundation for the redesign process, as the board provided a clear infrastructure of user involvement and developed a set of user-defined targets for services. The main targets-optimal health, holistic care and treatment, and empowerment-were operationalized as a set of action points, such as establishing HIV nurse coordinators. While there is no single method for user involvement, we offer useful ideas that can help others develop an involvement project that is effective and sustainable.