Premium
[P3–503]: CANADIANS’ PRIORITIES FOR DEMENTIA RESEARCH: OUTCOMES OF THE CANADIAN DEMENTIA PRIORITY SETTING PARTNERSHIP
Author(s) -
Bethell Jennifer,
Pringle Dorothy,
McGilton Katherine S.,
Chambers Larry,
Commisso Elana
Publication year - 2017
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1016/j.jalz.2017.06.1722
Subject(s) - dementia , general partnership , alliance , psychology , set (abstract data type) , health care , work (physics) , public relations , gerontology , nursing , medicine , political science , disease , mechanical engineering , computer science , programming language , engineering , pathology , law
Background:Health related quality of life (QOL) is a robust feedback measure of treatment efficacy. It gives good indication of patient’s coping and adaptation to the disease. Existing QOL instruments do not sufficiently consider various factors that impact patient with mild dementia and by extension their well-being. It is often overlooked that patients with mild dementia do have insight. Hencewe developed a more comprehensivemeasure; Mild Dementia Singapore Quality of Life (MDS-QOL) and present our preliminary findings. Methods:A 40-item questionnaire (MDS-QOL) was developed from a preliminary list of 71 items. This 71-item field version was conceived after a thorough review of existing literature and focus group discussions with dyads of dementia patients and caregivers. 6 domains were identified: Functional Status, Impairment of Cognition, Life Opportunities, Health Perception, Safety in Environment and Overall QOL. The field version was reviewed separately by Subject Matter Experts (SMEs) and also by a pilot group of 10 patients. These reviews aid in assessing relevance and conversion into a compact 40-item (MDS-QOL) questionnaire. The MDS-QOL was administered to participants whose responses