Open AccessDeveloping Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach
Author(s) -
Patel Arpan A.,
Woodrell Christopher,
Ufere Nneka N.,
Hansen Lissi,
Tandon Puneeta,
Verma Manisha,
Lai Jennifer,
Pinotti Rachel,
Rakoski Mina
Publication year - 2021
Publication title -
hepatology communications
Language(s) - English
Resource type - Journals
ISSN - 2471-254X
DOI - 10.1002/hep4.1743
Subject(s) - multidisciplinary approach , medicine , palliative care , specialty , multidisciplinary team , health care , medical education , nursing , family medicine , political science , law
Individuals with advanced liver disease (AdvLD), such as decompensated cirrhosis (DC) and hepatocellular carcinoma (HCC), have significant palliative needs. However, little research is available to guide health care providers on how to improve key domains related to palliative care (PC). We sought to identify priority areas for future research in PC by performing a comprehensive literature review and conducting iterative expert panel discussions. We conducted a literature review using search terms related to AdvLD and key PC domains. Individual reviews of these domains were performed, followed by iterative discussions by a panel consisting of experts from multiple disciplines, including hepatology, specialty PC, and nursing. Based on these discussions, priority areas for research were identified. We identified critical gaps in the available research related to PC and AdvLD. We developed and shared five key priority questions incorporating domains related to PC. Conclusion: Future research endeavors focused on improving PC in AdvLD should consider addressing the five key priorities areas identified from literature reviews and expert panel discussions.