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"Background: The Covid-19 pandemic has significantly impacted cancer careworldwide. The aim of this study was to capture the impact of Covid-19 on melanomapatients during the national state of emergency.Material and methods: We sent a survey to the members of the RomanianMelanoma patient community between April - May 2020.Results: We received feedback from 108 patients. Forty percent of the respondentsexperienced difficulties in accessing healthcare services, while 56% found it difficult orimpossible to speak with their physician. With regard to feeling safe in healthcarefacilities, 60% of patients felt safe in the private sector, versus 48% in public hospitals.Over half of the respondents delayed investigations such as dermoscopy, imaging, andlaboratory tests by their own initiative, while a third saw investigation delayed upontheir physician’s initiative. We found no significant delays in the administration ofsystemic therapies for advanced disease. While e-prescriptions for melanomatreatments were not communicated and implemented consistently, we noted anincreased interest in telemedicine and social media networks by physicians.Spontaneous patient reports collected in the same period further show the lack ofaccess to melanoma diagnostic surgery, insufficient management of side effects ofdifferent treatments, difficulties in obtaining pain medication, alterations in theadministration schemes of both immunotherapies and target therapies, andcumbersome access to Covid-19 testing.Conclusions: Our results provide a melanoma-specific perspective on the impact ofCovid-19 on patients that is unexpectedly nuanced with regards to patientsubpopulations and captures differences in impact between systemic treatment andJournal of Medical and Radiation OncologyJournal homepage: www.jmedradonc.orgOriginal research16other interventions. In addition, this proof-of-concept study demonstrates the ability of virtual patient communities to sensitively detect and report issues in health care provision, offering the opportunity for timely intervention. Based on our findings, we formulate a set of recommendations on how to save-guard melanoma care during the pandemic, some of which we believe to be generalizable to other patient communities."

journal of medical and radiation oncology

Critical Issues in Melanoma Follow-up and Treatment, Safety of Patients and Communication with Healthcare Professionals During Covid-19 Pandemic in Romania