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The purpose of this work is to observe the evolution of persons with autism or pervasive developmental disorders and profound intellectual disabilities (ID) implicated in a Programme for Autistic Residents ("PAMS = Programme Autisme Methode Structuree") within the Public Socio-Educational Institutions (EPSE) in Geneva. People with autism or pervasive developmental disorders are characterised by the need to live in a very structured environment. They would greatly benefit from a specific treatment programme in residential setting. Our main hypothesis supposes that behavioural disorders could be reduced if the environment is structured, constant and predictable. Time and space must be clearly organised in order to reduce anxiety. As a consequence of anxiety, we often observe behavioural disorders that can compromise the residential life and end up in hospitalisation. PAMS proposes an individual programme for each person, supported by objects, pictures or pictograms. In parallel, the social-educational staff is present in workshops and in apartments in order to enhance continuity. We evaluated the evolution of 10 residents' behaviour using the ABC (Aberrant Behavior Checklist, Aman and Singh, 1985) every three months. We chose to investigate behavioural problems as a criterion of well-being. We checked the presence and the importance of the autistic features using the CARS (Children Autism Rating Scale, Schopler et al., 1988) before the beginning of the study and then once a year. This longitudinal study over 21 months suggests a favourable clinical evolution of residents confirmed by a significant reduction of some behaviours. The evolution is slow and irregular, but a statistical decrease in irritability and social withdrawal factors was observed during the study. This result validates our hypothesis that PAMS is a beneficial programme for residents with autistic features. To confirm our results, this research will continue and has been extended to another resident group living with structured paedagogy and a control group. Further implications will be discussed.

Evolution of adults with autism and profound intellectual disabilities living within a structured residential programme: a 21-month longitudinal study