English (United Kingdom)

https://curated-unify.zendy.io/wp-json/zendy-region/v1/featured_content/oa?rat=en

https://curated-unify.zendy.io/wp-json/zendy-region/v1/highlighted_journal/

Global: Zendy Plus annual

Presents the access of premium content as premium feature

Premium Content

Presents the keyphrase highlighting as premium feature

Keyphrase Highlighting

Presents the summarisation as premium feature

Summarisation

Insights

Presents the pdf analysis as premium feature

PDF Analysis

Presents the zaia usage as premium feature

ZAIA

Global: Zendy Tools annual

Global: Zendy Free Plan

Global: Zendy Tools monthly

Global: Zendy Plus monthly

This work aims to ascertain whether the communication resources of the Web 2.0 used in virtual communities of patients with rare diseases successfully provide useful information and improve the health conditions of those affected by rare diseases. This observational study conducted on the websites of 80 organizations shows that these communities of social networks are indeed the preferred means of health-related communication for those affected and they provide a helpful mutual support network. The collective knowledge generated fosters co-participation in decision-making and provides a more focused approach to care for patient needs. KeywOrdS: Diseases, patients’ portals, social networks, communication in health, Web 2.0.

Use of Web 2.0 in virtual communities of patients with rare diseases in Spain