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Aim: Health related quality of life (HRQoL) and social background were assessed in children and adolescents with epilepsy and was compared with control children. Method: Children’s HRQoL was self-reported with the KIDSCREEN-52 questionnaire. 144 families with an epileptic child and 237 families from the general population were enrolled. Results: Children with epilepsy and their parents rated their quality of life poorer than their counterparts did in the general population. The 8-12-year-old children had higher scores than the adolescents. The parents’ opinions about their children with epilepsy were poorer than the reports of their children. There were no significant sex differences. The age, intensifying seizure frequency, polytherapy had a negative influence on six parts of the HRQoL. Well-treated epilepsy means a better quality of life. Interestingly, the duration of epilepsy had less influence. Family background regarding the parent’s occupation, education, marital status, large families was very disabled of children with epilepsy. Conclusion: Our study was based on the perspectives of children with epilepsy, not just on the opinions of their parents. Socio-demographic characteristics justify the disadvantage of parents and families caring for an epileptic child.

Does the Quality of Life Study Reflect the Sociodemographic Background of Epileptic Children and Adolescents?