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CIn pediatric palliative care, parents are main sources of support for children and often influence the quality of life their children experience. In related research of parent-child dyads in pediatric oncology, it is known that parents play a crucial role in how children adapt and battle their disease; however, when disease advances and there is less chance for cure, little is known about parents’ perception of their communication style on their child’s coping with disease progression. This qualitative study reports on interviews with 29 parents (mean age=38 years, range 32-54 years) of pediatric oncology and cardiology patients (mean age=14.7 years, range 9-21 years) with a poor prognosis (physician reported likely <20% chance of survival beyond 3 years) from two children’s hospitals and one pediatric hospice in Los Angeles, California. Perspectives on parent communication from parents’ individual narratives were recorded, coded, and analyzed using qualitative grounded theory methodology. Across interviews, parents identified six communication strategies they deemed to be highly salient and influential in helping their children confront advanced disease. These included facilitating communication between the child and others, promotion of family understanding, showing awareness, discussion of stressors, redirecting the child, and demonstrating protection and comfort. Findings from this qualitative study can be used by clinicians to recognize and monitor communication patterns between parents and their children with advanced disease. In turn, knowledge of these communication domains can be used as a stepstone toward improving interventions aimed at maximizing pediatric quality of life, especially as disease progression occurs. DOI: 10.29011/APCM-104. 4

Parent Communication Strategies for Facilitating Children’s Coping with Pediatric Advanced Diseases