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The majority of individuals with learning disabilities within the United Kingdom (UK) are cared for by a family member, usually a parent. However, individuals with learning disabilities in the UK are now living longer than ever before [1] which means that the number of ageing family members providing care is also increasing. Furthermore, an increasing number of individuals with LD are now also outliving their parents [2]. Despite this, many adults with LD and their ageing carers do not make plans for their future [2], including periods of care crisis such as the serious illness or death of their ageing primary care provider.

biomedical journal of scientific and technical research

Protocol - A Systematic Scoping Review of the Interventions Available During Care Crises for People with Learning or Intellectual Disabilities (LD) who are Cared for by an Ageing Carer within the United Kingdom