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Objetivo: Caracterizar pacientes com Esclerose Multipla segundo sexo, idade, cor da pele, escolaridade, tempo de diagnostico da doenca, tempo de reabilitacao, profissao/ ocupacao, medicacoes em uso; avaliar a capacidade funcional pelo Indice de Barthel; identificar principais deficits de autocuidado relacionado as eliminacoes vesical e intestinal. Metodo : Estudo exploratorio descritivo, de campo, quantitativo realizado no Centro de Reabilitacao e no CATEM do Hospital Central da Irmandade Santa Casa de Misericordia de Sao Paulo. A coleta de dados ocorreu nos meses de agosto a outubro de 2016 e abril de 2017 atraves da aplicacao de 3 instrumentos. (CEP/ISCMSP: CAAE: 56356616.0.0000.5479 e CAAE: 56355816.3.0000.5479). Resultados: A amostra constituiu-se de 27 pacientes onde predominou genero feminino 66,7%; faixa etaria dos 56 a 65 anos 40,8%; cor da pele branca 77,8%; nivel de escolaridade ensino medio completo 51,9%; tempo de descoberta do diagnostico acima de 20 anos 29,7%; tempo que o paciente faz reabilitacao ate no maximo 6 meses 66,7%; profissao/ocupacao com 66,7% aposentados sem desempenhar qualquer ocupacao; 55,5% usando medicacoes para controle da Esclerose Multipla. O Indice de Barthel evidenciou 48,1% de pacientes com grau de dependencia moderada. Os principais deficits de autocuidado relacionado a eliminacao vesical identificaram 37,0% da amostra com frequencia miccional inferior a 3 horas, 55,6% apresentando perdas de urina na roupa; relacionado a eliminacao intestinal identificaram 22,3% da amostra referindo evacuacao 1 vez na semana, 40,7% referindo eliminacao de fezes endurecidas. Conclusao : A amostra estudada tem caracteristicas de incontinencia urinaria e obstipacao intestinal sendo relevante papel do enfermeiro junto aos pacientes com Esclerose Multipla. Descritores: Esclerose multipla, Eliminacao intestinal, Sistema urinario, Autocuidado ABSTRACT: Objective: To characterize patients with Multiple Sclerosis according to gender, age, skin color, schooling, time of disease diagnosis, rehabilitation time, profession / occupation, medications in use; assessing functional capacity by the Barthel Index; to identify major self-care deficits related to bladder and bowel eliminations. Method: Descriptive, field, quantitative exploratory study performed at the Rehabilitation Center and CATEM of the Central Hospital of the Irmandade Santa Casa de Misericordia, Sao Paulo. Data were collected from August to October 2016 and April 2017 through the application of 3 instruments. (CEP/ISCMSP: CAAE: 56356616.0.0000.5479 e CAAE: 56355816.3.0000.5479). Results: The sample consisted of 27 patients with a predominance of 66.7% female; age group from 56 to 65 years old 40.8%; white skin color 77.8%; high school education 51.9%; time of discovery of the diagnosis over 20 years 29.7%; time that the patient does rehabilitation until a maximum of 6 months 66.7%; profession / occupation with 66.7% retired without any occupation; 55.5% using medications to control Multiple Sclerosis. The Barthel Index showed 48.1% of patients with moderate degree of dependence. The main self-care deficits related to bladder elimination identified 37.0% of the sample with voiding frequency less than 3 hours, 55.6% presenting urine losses in the clothing; related to intestinal elimination identified 22.3% of the sample referring to evacuation once a week, 40.7% referring to elimination of hardened stools. Conclusion: The studied sample has characteristics of urinary incontinence and intestinal constipation, being an important role of the nurse next to patients with Multiple Sclerosis. Keywords: Multiple sclerosis, Intestinal elimination, Urinary tract, Self care

arquivos médicos dos hospitais e da faculdade de ciências médicas da santa casa de são paulo

Déficits de autocuidado relacionados à eliminação vesical e eliminação intestinal na esclerose múltipla / Self-care deficits related to vesical elimination and intestinal elimination in multiple sclerosis