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Purpose: Evidence suggests that oral health effects and dysphagia remain chronic conditions for patients who undergo radiotherapy with or without chemotherapy ([chemo]RT) following diagnosis of head and neck cancer (HNC), however, there is limited outcome data beyond 1-2 years post-treatment. The aim of the current study was to investigate the long term patient outcomes at 5-6 years post- (chemo)RT using patient-reported functional measures. A secondary aim was to examine the extent of services accessed, and desired, by this group. Methods: A retrospective audit was conducted to select patients treated curatively for HNC using (C)RT and seen by speech pathology. Twenty eligible long term HNC patients treated with (chemo)RT completed a series of patient-reported outcome measures, a quality of life (QoL) scale, a general distress tool and questions relating to services. Results: Results revealed that at 5-6 years post-treatment, over half reported moderate to severe oral health effects, and only 30% tolerated a full normal diet. Moderate to severe levels of distress were reported by 25%, though global QoL remained positive. Few had sought further services for these issues. Conclusions: Persistent oral health effects, chronic swallowing difficulties, and distress are common in this population. Clinicians need to be aware of the long-term nature of patient-reported dysfunction and tailor appropriate services and supports to patient need.

Oral Health, Dysphagia, Distress, and Health Service Needs of Head and Neck Cancer Survivors 5 Years Post-Chemoradiotherapy