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6 Acknowledgements  7 Characteristics of current older adult population in Canada  8 Adapting to change in older life  9 Retirement.  10 Loss of loved ones.  12 Adapting to physical and cognitive changes.  13 Dementia  16 Caregivers  21 Older adults and driving  22 Rural and urban residences.  23 Transit alternatives usage and accessibility.  24 Collision risks  25 Medically at risk drivers  26 Vision.  26 Cognition.  27 The decision to stop driving  31 Compensatory strategies.  31 The driver’s choice to stop driving  32 Physicians and duty to report  32 Licensing body.  34 PWD and the decision to stop driving.  34 The impact of driving cessation on older adults and PWD 36 Older adult’s general health.  36 NEEDS OF CAREGIVERS TO PWD WHO LOST THEIR DRIVING PRIVILEGES 3 Development of depressive symptoms in older adults.  37 Reduction of mobility in older adults.  38 Mortality risks in older adults.  39 The impacts of driving cessation on caregivers  40 Family dynamics.  41 The caregiver’s employment.  42 The caregiver’s emotional well-being.  43 Interventions regarding driving cessation  44 Method  50 Recruitment  50 Participants  51 Procedures  51 Measures  52 Results  54 Caregiver challenges and adjustment to dementia  54 Caregiver grief & negative emotional wellbeing.  55 Negative emotional wellbeing.  56 Frustrations with ADLs.  57 Public space dysfunction.  57 Unusual habits.  58 Challenges adopting new roles.  59 Caregiver loss of independence, free time and social network.  60 The loss of driving privileges  61 How the driving privileges were lost.  61 PWD’s reaction to the loss of privileges.  62 NEEDS OF CAREGIVERS TO PWD WHO LOST THEIR DRIVING PRIVILEGES 4 PWD accepted the transition to non-driving.  62 PWD did not accept the transition to non-driving.  63 Adapting and coping to the loss of driving privileges 63 PWD’s loss of independence.  64 Caregivers’ driving privileges.  64 Caregiver difficulties with scheduling.  65 Caregiver challenges with driving duties.  66 Missing the PWD’s driving.  67 Support from neighbours, friends and family.  67 No use of public transportation.  68 Caregiver needs and support following PWD’s driving cessation  70 Information sessions.  70 Need for transportation alternatives.  70 Psychological services and support.  71 Discussion 74 Emotional wellbeing  75 Challenges managing their own emotions 75 Challenges managing the PWD’s emotions.  76 Grief.  76 Psychological support for caregivers.  78 Caregivers’ transportation needs

The Needs and Experiences of Caregivers to Persons with Dementia (PWD) who have Lost their Driving Privileges