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Objectives: This study examines patients' evaluation of an educational and training experiential intervention (ETEI) developed to enhance muscle invasive bladder cancer (MIBC) patients' treatment decision-making and post-treatment self-care. Methods: Participants were recruited from the Mount Sinai Medical Center and via the National Bladder Cancer Advocacy Network website between December, 2011 and September, 2012. Data were collected via individual interviews and electronic medical record review. Qualitative analysis of patients' reaction and evaluation of the proposed content of the ETEI modules was performed. Results: Data were collected for a total of 30 study participants (26.7% women; 93.0% non-Hispanic White) who underwent cystectomy and urinary diversion for MIBC. Mean age was 66.6 years. 50%, 43.3% and 6.7% of patients were treated with ileal conduit, neobladder and continent reservoir respectively. High satisfaction rate with the educational and training components was reported. Conclusion: The study results emphasize the importance of the proposed ETEI and appropriateness of the informational and training modules for both patients and their caregivers. Such an intervention will help reduce the burden of care on patients, care-givers and care-providers. Practice-implications: There could potentially be an increased need for resources – educational booklets, audio-visuals, trained health care personnel, length +/number of appointments.

joj urology and nephrology

Patients' Evaluation of an Educational and Training Experiential Intervention (ETEI) to Enhance Treatment Decision and Self-Care Following the Diagnosis of Muscle Invasive Bladder Cancer