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Over the years, a significant amount of research has been conducted on the effects disabilities have on parents, however, there has not been much research conducted on the subject-matter from the perspective of the child. The focus of this study was to investigate the overarching themes expressed by individuals who grew up with a parent with a disability; self-perceptions, relationships, and skillfulness. Within this two-phase study, participants were distributed YCPS (the Young Caregivers Perception Survey) as well as a revised version, the YCPS-R through an online SONA system at a Northeastern university. Consistent findings in this study revealed that participants reported that they had perceived higher levels of independence and overall responsibilities to the family as compared to their friends or other children with parents who are not disabled. Participants also reported high levels of support from siblings, relatives, and friends, as well as felt as though they were able to ask for help from others.

Adolescent Perceptions on the Impact of Growing Up With a Parent With a Disability