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Purpose: To describe parental knowledge and misconceptions of genetics. Study design and methods: A qualitative, descriptive study utilizing semi-structured interviews (n=32) was conducted in private rooms with mothers or mother-father dyads 24-48 hours after the birth of their healthy, full-term infant. Audio recording and field notes were collected. Thematic analysis identified major categories pertaining to parental knowledge of genetics in healthcare. Results: Two themes were identified: parental lack of knowledge and misconceptions of genetics in healthcare and parent’s perception of the value of the genetics in healthcare. Parental source of genetic information emerged as an accounting of where parents obtained genetic information. Thirty-eight percent of parents felt they had little knowledge of genetics. Twenty percent of parents acquired their genetic information from personal experience. Seventeen percent of parents acquired their genetic information from public media, and 10% of parents acquired their genetic information from someone who experienced genetic testing. Parents perceived value in prenatal diagnosis of variable conditions or disease but had mixed opinions on the value of genetics in healthcare after the child was born. Clinical implications: Significant gaps and misunderstandings in parental knowledge of genetics were identified. Removing potential parental knowledge barriers is essential for parental understanding of the role of genetics in health, illness, and pediatric genetic research.

Parental Knowledge and Misconceptions of Risks to Healthy Newborns in Genotypic Driven Pediatric Research